New Glasses and Dancing at the table

 

Joy is too cute – we love you baby

Joy’s Random Life

Joy is such a pretty girl.  I loved these pictures – her face is dirty in the one, but it is so good for her face.  I had to post it!  :)

Have I mentioned Joy LOVES and adores bread.  It’s a good thing she isn’t the one with Celiac Disease.  Pretending on the phone – another love of hers :)

 

Bella’s paramedics are so sweet with Joy – they give her rides!  I pray this is the only way you EVER ride on one of these my baby.

I’ve mentioned it a million times before – but I love Joy’s hair.   

Our latest accomplishments – drinking from an open cup!  WAHOO!  And then from therapy, sorting.

 

In Shock

I had some fun pics of Joy to post –but I am in shock today.  A very sweet and HEALTHY little girl, Carly, with DS passed away unexpectantly.  I had to grab my Joy and squeeze her.  How I love this little girl!  She is the joy that she is named for.  I am so grateful for her in my life.  I love you baby.

I love this picture!

Joy, the Teacher

Joy loves her sister – but she also thinks she has to teach her everything!

Joy’s Life

This was so cool – a vibrating pencil.  She was fascinated!

 

Her daily viewing of Ponyo.

 

 

 

 

 

 

I admit it.  I am a coward.  Joy had never played with play-doh until yesterday in therapy.  She enjoyed it, though.  :)

 

 

Joy adores her sister!

 

 

 

 

 

 

Miss Kris left us yesterday.  She headed back to college.  We love you Kris!

Lovin’ and Playin’

 

Oh and happy news!  I found a preschool for Joy.  It is close by and has an excellent reputation.  I went by with Joy and loved the director and the teacher.  They haven’t had a child with disabilities there in 10 years, but they are willing to try – wahoo!  We are going to put her with the older 2’s (she has a summer birthday and will just be 3).  I am thrilled about that – she’ll get some good peer modeling.  She’ll go 3 days a week M/W/F from 9 to 2:30.  Yeah for Joy!  Yeah for Me!  Yeah for Cypress Creek Christian Preschool!

Easter

More Fun for Joy

Playing with blocks and some magnetic disks

 

Playing with Sammi – with fluff and water

Eye Exam

Getting ready for eye drops

Waiting for dilating drops to work

 

Getting ready for the doc

The results?  Far Sighted, Astigmatism.

He gave me a script for glasses but did not promise me she’ll want to wear them!  :)  We’ll see.  He says that if she were a normally developing kid, he probably wouldn’t put her in glasses, but since she has DS, she has difficulty focusing.  At this point she is down, right on top of her papers to color.  We’ll give it a try and see how it goes. 

Joy’s Week and My Ramblings

 

 

 

I love my sister!

 

 

 

 

 

 

 

Sammi was practicing her batting for softball and Joy wanted to take a turn.  Too cute!

 

 

 

 

 

 

She plays what she sees.

 

 

 

 

And now my dilemma.  Preschool screening went fine.  My ECI coordinator had gone over with me what would happen.  And I’m grateful or I might have lost it.

An OT came and looked at our OT’s report and told me that they only deal with educationally goals and walked out.  We have been working on feeding/sensory/self help goals at home.   The PT watched her climb into a chair and then walked out.  What does that mean?  During the first three years of life, interventional therapy works on the whole child.  Once you turn three, it’s all educationally.  If she can get food to her mouth and get into a chair, then OT and PT consider her functional.  Joy receives private therapies – thank goodness – because they don’t consider “functional” a stopping point.  Socially acceptable and developmentally appropriate are more what we are shooting for.   Fortunately, because her therapies are private, she will be able to continue to receive them even after she turns three.  The actual testing was fine.  She didn’t perform as highly as she is capable of, but she got the drift.  She has some “good skills” according to the ST who did the testing.  We go back again in a month for the cognitive test and the formal diagnosis.  The diagnostician said at that meeting she will receive the diagnosis of Mental Retardation and Speech Impairment.  Labels and I have a love/hate relationship.  I know that they are necessary.  I know that they allow her to get extra help.  But when I look at Joy I see a smart and communicating little person.  All of this was fine.  What isn’t fine is that they told me what school she will be attending and it’s different than I was expecting.  There are 3 schools near us with Early Childhood programs, but no, they want to send her to another school further out.  As I have sought out information about this school, I’m not liking what I’m hearing.  There are two ladies at my church that work in the Special Ed department for our local schools and they are trying to get the skinny on that particular school for me.  But then our ECI coordinator reminded me that she doesn’t have to go to school.  She also told me that a lot of kids on the spectrum end up at that school.  That scares me – she sees and she does!  That is one reason inclusion is so important.   She told me that Joy has a good program going on here – right now.  She has all of her therapies in place.  She reminded me that I am an educator (I have an Early Childhood Education degree).  She said just look at her picture and all that is missing is the social.  Her suggestion for my Joy?  A Mother’s Day Out program that follows an NAYEC model.  Ugh!  In my mind I had seen Joy at school growing up.  But I want her in a good program with good teachers – and I don’t want to have to become “that mother” to get it for her.  I don’t think that I should have to.  Shouldn't the school district do what’s best for the child because it’s what’s best for the child?   Unfortunately, that is the one way to set off my mother bear – if I think that my kids are being messed with.   School doesn’t start till August.  We’ll see what happens.

Preschool Screening

We are off!  I have no idea what to expect.  We’ll see…